WETHERILL Park's Ursula Morassut has devoted her life to taking care of her 31-year-old daughter Heidi.
Heidi was diagnosed with the rare metabolic disorder methylmalonic aciduria when she was just 10 weeks old.
The condition is an inherited disorder in which the body is unable to process certain proteins and fats properly.
In the long-term, complications can include feeding problems, intellectual disability, chronic kidney disease and inflammation of the pancreas (pancreatitis).
Without treatment, the disorder can lead to the affected person falling into a coma and, in some cases, even death.
So Heidi requires 24-hour care.
Mrs Morassut said the condition had left Heidi intellectually disabled and affected many aspects of her daily behaviour.
"She's on a very high dosage of B12. That keeps her condition under control," she said.
"I've also got to watch her diet.
"She's on a low protein diet.
"She can't eat meat and can only have two slices of cheese and one slice of ham a day."
Mrs Morassut's dedication to caring for Heidi recently earned her an honourary role with disability service provider, Northcott when she was asked to be its ambassador for this year's Carers Week.
"I feel very honoured," Mrs Morassut said. "We are all struggling to do our own thing, so I think it's important to have Carers Week so that people recognise what the carers are doing."
She said while managing Heidi's behavioural issues could be challenging, caring was also a rewarding experience.
"It's a battle every day to have Heidi do what needs to be done," she said. "There is lots of screaming and yelling, the challenges are huge and impact on the whole family.
"But it just makes my day when I see Heidi is happy and being accepted by others."
This year, Carers Week ran from October 13 to 19.
For more details, visit northcott.com.au.